Become a Dementia Advocate
Alzheimers Australia NSW values your voice as a consumer and encourages you to share your story about dementia. This helps us to:
- Ensure we understand the needs of carers and people living with dementia
- Raise awareness of dementia as a chronic health condition
- Increase community understanding about living with dementia
- Enable greater social inclusion for people with dementia
- Help government and service providers recognise the needs of people living with dementia, their carers and families and
- Reduce the stigma associated with dementia in our society.
Who can become a Dementia Advocate?
If you are a person with a diagnosis of dementia or a current or former carer of a person with dementia, you are welcome to join the Dementia Advocates Program.
What is the role of a Dementia Advocate?
As a Dementia Advocate, you will support our work through:
- Engaging with media: radio, television, print and online
- Assisting with fundraising campaigns
- Speaking at forums or public events
- Participating in one of our NSW Consumer Advisory Groups
- Providing feedback for service development
- Assisting Alzheimer's Australia NSW in advocating to policy makers about dementia
- Participating in social research projects or
- Representing Alzheimer's Australia NSW at community group events
How do I become a Dementia Advocate?
If you would like to become a Dementia Advocate, or learn more about the program, please contact:
Alzheimer’s Australia NSW’s Consumer Engagement Manager:
Jo-Ann Brown on (02) 8875 4636 or email
Our Dementia Advocates
Imelda is married to Graham, who lives with younger onset dementia in residential care. She is a member of our Sydney Consumer Advisory Group and has contributed in a number of ways to the advocacy work we do at Alzheimer’s Australia NSW.
"Graham and I see ourselves as very ordinary people and at first I was surprised that anyone would be interested in our story. However, in telling our story, I’ve felt validated and listened to as a carer and I believe we’ve made a positive contribution to the community, despite the devastation of this illness. It remains my desire to honour the man I love and to continue with our agreed intention of telling our story, even as it continues to unfold and I now have more time and energy to devote to this resolve.
- I’ve begun to enjoy the experience of taking part in fundraisers, such as the Memory Walk;
- I keep my eye out for research projects and you know it really doesn’t take that long to complete those surveys. As carers and people living with dementia, our contribution is essential to the validity of their data.
- I look for opportunities to support any initiatives of Alzheimer’s Australia NSW to lobby government representatives to increase the awareness of the needs of people living with dementia.
- I’ve been able to sit on a Consumer Advisory Group and it’s been affirming and encouraging to see that I do have a voice and people are listening to what I say.
- I’ve been able to contribute by speaking at workshops and forums and other Alzheimer’s Australia NSW projects.
- Equally importantly, I talk to anyone in our community who will listen about the reality of the disease, rather than the myths and legends that seem to have become attached to this world of dementia."