Younger onset dementia - NSW

A diagnosis of younger onset dementia can be very isolating.

You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone.

Alzheimer's Australia NSW provides a number of support services for people who have are living with a diagnosis of younger onset dementia (diagnosed under the age of 65).

  • The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia. Read the program brochure
  • A diagnosis of younger onset dementia may entitle you to support services offered under the National¬†Disability Insurance Scheme (NDIS). We can help you access these.
  • The younger onset dementia Living with Dementia Program is an early intervention program providing information and support specifically for people living with early stage dementia and their family and friends
  • Counselling, both individual and family, provides opportunities¬†to talk through issues related to the impact of younger onset dementia
  • Social, support and therapeutic programs include dementia cafes, support groups, community activities and connect people with younger onset dementia and family members with others in a similar situation to share experiences
  • A blog site for children who have a mum or dad with younger onset dementia
  • Referrals to other health and community services as may be beneficial

Services aim to provide education, information and support, and importantly, a safe place to engage with others in similar circumstances.

More information about understanding and managing younger onset dementia is available here.

If you or someone you know has received a diagnosis of younger onset dementia, we are here to help. Contact the National Dementia Helpline on 1800 100 500 or email us