A new horizon?
The outcomes from Day 1 of the summit are provided in the report, Younger Onset Dementia: A new horizon?
The report includes six priority areas for action:
- Increased awareness to reduce stigma and to improve the opportunity for social participation by individuals in their local community.
- Timely and accurate diagnosis with access to specialist services as needed.
- Ensuring the National Disability Insurance Scheme (NDIS) places the person with younger onset dementia and their family at the centre and supports their choices and control over their future and the services and supports they require.
- Action by service providers to redesign their services so they can respond flexibly to the goals, aspirations and plans of younger people with dementia.
- Opportunities to participate in society with access to employment and adequate income security.
- There must be a greater investment in research into causes, cure and care of younger onset dementia if there is to be a better understanding of the condition.
These priorities were further discussed on 20 March 2013 at Day 2 of the Younger Onset Dementia: A new horizon? summit, which was attended by 320 service providers, stakeholders and policy makers across the aged care, disability and mental health sectors.
Speakers at the summit included Ita Buttrose, people with younger onset dementia, their carers, service providers and researchers. Speeches and presentations can be accessed at the bottom of this page.
Alzheimer's Australia would like to acknowledge the generous support of the Lord Mayors Charitable Foundation and Nich and Rosemary Rogers.
Click on the following links to access further information:
- Younger Onset Dementia: A new horizon? (PDF, 262 KB)
- Quality Dementia Care 4: Understanding Younger Onset Dementia (PDF, 448 KB)
- Media Release (PDF, 71 KB)
Alzheimer's Australia's submissions on younger onset dementia
- Response to the National Disability Insurance Scheme Bill 2012 (PDF, 213 KB)
- Response to the COAG Consultation Regulation Impact Statement (PDF, 108 KB)
Speeches and presentations
To view the speeches and presentations given at the 2013 Younger Onset Dementia Summit, click on the links below (they will all open as PDF format).
- A new future for people with younger onset dementia?, Ms Ita Buttrose
- My story, Chontell Johnson
- A call to action, Kate Swaffer
- Services that will benefit carers of people with younger onset dementia, Tony Walsh
- Lack of proper assessment, Nigel Sarson
- Dementia not recognised as a disability, Glenda Parkin
- Quality services available to people with younger onset dementia, Edie Mayhew
- How can we make more services age appropriate?, Sandra Ruiz-Avila
- What would a dementia friendly society look like?, Hugh Grundy
Liz Cairns, Victorian State Manager, NDIS Launch Transition Agency
Topic: National Disability Insurance Scheme
Christian Bakker MSc, Program Manager, Florence Centre for Specialized Care in Young Onset Dementia and Healthcare Psychologist, Department of Primary Care and Community Care, Centre for Family Medicine, Geriatric Care and Public Health, Radboud University Nijmegen.
Topic: Service provision in young-onset dementia: Towards an integrated approach
Dr Adrienne Withall BSc (Hons), PhD, Postdoctoral Research Fellow, Dementia Collaborative Research Centre
Topic: Services for younger onset dementia – what can we learn from international models?
Mandy Lovell BA, Grad.Dip. Psychology, MA (Criminology), The Lovell Foundation
Topic: The Lovell Foundation: A consumer voice for residential care options
Robyn Faine, General Manager, Services, Alzheimer’s Australia NSW
Topic: Service system development strategies for addressing the needs of younger onsetdementia
Associate Professor David Darby MBBS, PhD, FRACP, Neurologist, Eastern Cognitive Disorders Clinic
Topic: Dementia syndrome in younger people
Belinda Nixon, Younger Onset Dementia Program Officer, Alzheimer's Australia Vic
Topic: Alzheimer's Australia Victoria younger onset dementia services
Rosemary Mc Grann BA (Hons) /BSocSc SPAS, Team Leader, Central Bayside Community Health Services, and Lyn Entwistle BAppSc (OT), Client Assessment and Services Occupational Therapist, Aged Services, Central Bayside Community Health Service
Topic: Give It A Go: An active program for people with younger onset dementia
Angie Robinson, Executive Manager Service Development, UnitingCare Ageing Hunter, Central Coast & New England Region
Topic: HOPE in the Hunter: Helping other possibilities emerge through partnerships