Stories

The stories on these pages are from people affected by dementia.

Click here to tell us your story.

 

My Greatest Sadness.

I have found myself, at the age of 62
In a place that I never thought I’d be
I have a husband, children, and grandchildren. Let me tell you a little about me……

My mind is in a fog, my days seem empty
No longer can I work – the future seems bleak My memory is going, and anxiety now haunts me Every day it’s just normality that I seek

First signs

My name is Wendy and I am 54 years old. Prior to my diagnosis (which was 3 years ago) I was working full-time as a Payroll Officer and I was a sole parent with my 22 year old daughter living at home.

It was in my work place that I first noticed something was not right. I had been in Payroll for 18 years and couldn’t remember how to do back pay or remember the meetings that I had attended. So after becoming quite concerned about what was going on at work I went to my GP of several years. 

My mum’s story is a tragic one, although there was a silver lining in the end.

Since I was 9 (I am currently 45) my mum, Maurine, had battled with mental health issues. She had bipolar disorder, anxiety and depression and until her late forties was an alcoholic.

33 years ago my Mother was diagnosed with Dementia.

The Doctor told my Father and me that Dementia meant Mum's brain cells were dying, and nothing could be done.

She would soon be institutionalised in Kenmore Mental Asylum - a very old, lock-up facility. This left us feeling helpless, hopeless and broken-hearted over what was happening.

The illness progressed as expected, with Mum "living" her last 4 years in Kenmore, not recognising me, not talking, and cared for by people who were not able to help us connect in any way.

Where Or Who Do You Go To When You No Longer Have The Strength To Be A Carer - What Do You Do?

I have tried so very, very hard to keep my husband, with Alzheimer’s, at home for as long as possible, and not place him in a Nursing Home. 

My husband was diagnosed 4 years ago with Alzheimer’s as a result of my noticing speech repetition patterns developing over a period of a few months. There are some excellent services available to people suffering from this dreadful disease but I feel that there are some areas which need addressing urgently especially in the light of the burgeoning number of cases diagnosed each year.

Michael grew up in the South-West of England, living in the fishing villages of Cornwall and Devon. 

He enjoyed an active outdoor life.

A natural ability in art took him to art college, which was then interrupted by his conscription to the British Air-Force, where he was chosen to be a Fitness Instructor. From there he was recruited to be trained in the newly developed Diploma in Remedial Gymnastics, to help rehabilitate severely disabled ex-servicemen.

I care for my wife Margaret.

Diagnosis- Official diagnosis by Professor Woodward approx. 8 years ago after 18 months of tests at Aust/ Repat. Hospital.  

Medication prescribed- Aricept which helped for a number of years but now has minimal effect. Regular annual checks by GP over above time. We were retired at time of diagnosis.

He had had dementia for some years now, but only stopped driving a year ago, after driving his car into the bush and needing to be triangulated using the 'find my iPhone' app.  

The police, after six hours of telling them where he was, couldn’t find him. I did.

This was very distressing and he was very cold.

My Father was a head teacher at TAFE and a licensing inspector before that, directly reporting to the licensing magistrates court. I still have his ID.

A Lady with dementia needs her morning medication

I made my way, with breakfast tray without much hesitation

A cup of tea, a piece of toast one tablet to be swallowed

There was a kind of sameness as the conversation followed 

She asks me every morning why she needs this medication,